"You get what you pay for, but I just had no intention of living this way." -Counting Crows

Why We're Here...

My husband David and I delivered a stillborn Baby Boy that we loved, and wanted. Our first and only son, Logan, had Down Syndrome. Our daughter's smile is a little light in the darkness. She turned one year old three days after our sweet Logan tip-toed away on January 24, 2009. After 2 1/2 years we found out we were having another baby, whom we affectionatly called Rudy. Just shy of 6 weeks we found out Rudy was Ectopic. Rudy was surgically removed on May 26, 2011 delivering another blow to our already broken hearts.


Showing posts with label Punched in the Face. Show all posts
Showing posts with label Punched in the Face. Show all posts

Tears and tears and more tears!

Two years and seven months later one might think that I'd have moved on, gotten over, healed...


And maybe its being in the wake of the stillbirth of my friends son that has brought everything back up front and center. Remembering things I forced myself to forget. Watching her pain is a kin to what it must've been like watching me from afar. Seeing her sorrow and grief reminds me of the sorrow and grief I had for so long, the sorrow that remains still. Knowing what's ahead of her, the horrors she will encounter that she has no clue are coming her way.


Yesterday, in preparation for our garage sale, my husband asked me to go through the baby stuff we saved from my living daughter. Sigh. It was just bad timing. This past week and a half was already filled with sorrow. Sorrow for what I have lost, sorrow or another dead baby, sorrow for the life my friend has watched go up in smoke. I tackled the chore with a margarita in hand (since my DD was at G'ma's) and forced myself to look through the baby paraphernalia, stone faced, detached and under the guise that it didn't matter anymore. Logan was a boy, Rudy a question mark (but I've worked it into my head somehow that he must've been a boy also), so ridding my home of baby girl clothes shouldn't bother me. It didn't mean I wasn't going to have another baby (my DH assured me!), it just meant that the new baby would get his or her own clothing. Like I'd ever be able to put a new baby in the few outfits that I bought specifically for Logan anyhow. I did ok, saving the last 3 bags of "neutral" clothing that I put aside before Logan died for last. There was one bag of all boy clothing, and in that bag were four very special little outfits that I bought for Logan just before he died.


I kept those.


They hang in the closet in the empty spare room...the room we dubbed "the baby room" in our new home because that is where we put all of the baby stuff when we moved in. In the end I kept very few things. A few really special dresses of my dd, Logan's clothes, and some other odds and ends. About a tenth of what was there. I did not cry. I sat there and I stared a lot. I listened to an audio book to help keep my mind busy.


Unfortunately it took me catching my brand new grill on fire and destroying it at dinner time to bring me to tears. And cry I did! I cried loudly and with everything in me. I cried for my grill, for Logan, for Rudy, for my friend and her baby, for babies everywhere, for the ghosts that haunt me, for the loss of future children...I cried and I cried and I cried.


I guess I needed to.

Round two; Saying goodbye to Rudy.

Here I am, pacing another hospital room, trying to come to terms with another dead baby. Two dead babies now. Logan ia now joined by a sibling we long ago nicknamed Rudy. A sibling only in existance a mere five and a half weeks.

Rudy was Ectopic. Located half way down my right falopian tube. A tiny, miniscule, actively beating heart pulled mercilessly from my shocked body by a robot.

I am supposed to be happy that I am alive. Lucky, they say.

Guess I'm not there just yet.

Crap! Where'd I put that armor!!

I've been feeling very attacked lately. By people who are close to me. People who ought to know better, be softer, love me more, catch me, take a bullet...you know, those people. But lately those are the ones I want to run from, hide from, close myself off from. I "see them coming" and my first instinct is to flinch, put my hands up, protect myself. It seems off to me, when I sit and I think about it. It makes me bitter. It makes me hateful and angry. And again I feel myself withdrawing, turning in, turning away. And I start to feel like I let my guard down, didn't put my armor on. Its my fault really. I have always kept everyone at an arms length, don't get too close, don't know too much. I don't feel comfortable in intimacy. I often recoil and shrink back when people touch me, I don't like it. I feel a sense of insincerity about it all. Like a snake coiling around its prey whilst singing a pretty song. I haven't always been that way. Its something I've picked up as an adult. But years upon years of feeling kicked around, stepped on and beaten down by the ones who are supposed to protect you will leave one feeling very defensive, skittish and distant. When Logan died I wanted to disappear. I wanted to fade away. I didn't want to die. I didn't want that kind of attention. I just wanted to not be noticed as I faded. I wanted to be left alone. And because I was so raw and angry early on, I was able to shut down and ignore and run and not many thought too much of it. These days I feel like that is not possible anymore. Like I am being sought out intentionally. Called to reconcile, called to state my case, defend myself, account for the behavior that is found unacceptable by people who can't fathom. And these days I feel like I am frantic in my search for where I stashed my armor. When I started to let the defenses down, when I started to "fade in" and people thought it ok to share their view of me, with me. I need that sign back. I need a T-Shirt, maybe even my baseball bat again.

And all of that leaves me feeling like all I've managed in my adult life is to let people down. My mother cries for a relationship with a fictitious daughter. I say fictitious because I will never be, could never be, the daughter she so desires. It leaves me feeling not good enough and alienated. My father, humph! There are not enough words in all the languages of the world for that mess... But it has left me asking why? And it has left me feeling ugly, shoved aside, overlooked, abandoned and so many other feelings that I don't even know the words for. [think scene from Hope Floats where her daddy drives away and leaves her screaming in the drive] My stepmother likes to remind me. Likes to send me hateful letters that make me feel as though I am to blame. Likes to make me feel as though I am the delusional one, the childish one, the selfish hateful one. The same woman who hasn't spoken to me in almost two years. The same woman who didn't acknowledge my son's death and chose, instead, to scream hateful things at me from the background, through the phone. This leaves me feeling like my head may start spinning, fangs may be produced and horns will shoot forth from my skull all while a demon-like guttural scream rises up from the depths of the darkest parts of my soul. And in the midst of such things I feel repulsive and disgusting to my beloved. Which leaves me feeling unsexy, undesired and gross. Not what a woman wants to feel, not to mention the affects it has on our intimacy.

Now I feel as though I have come full circle. I feel like I am back to feeling like I was better off locked away. And I yearn for the permission to fade away. I yearn for the acknowledgment that its normal, expected and okay to run and hide from the real world when I find it so difficult to accept my new reality. One that will always have one child less than should be present. And regardless of how many people, in their numerous ways, try to convince me that because they know loss and pain that they understand mine, when I can not begin to think they do. I do not try for a moment to understand what it would be like to loose a spouse, a parent or to have had cancer. I can not comprehend the pain of wanting to bear children and not having my body cooperate and get pregnant in the first place. I do not understand the pain of infertility because I have not been infertile. Those are different pains, different losses, ones I can not comprehend. But I hear it all the time. Loss is loss, pain is pain, and I say it myself. But the reality is that divorce and rejection are different realities then parenting a dead baby. Having your parents die, or your spouse is not the same has having a child die, nor is having a child die the same as a parent or spouse passing. I can not explain it. I do not try to put them in the same category. Its like saying the love for your child is like that of the love for your spouse. I can not try to reason with people that no, my loss is not the same as their loss. I am stymied as to why people want so desperately to find that common ground with me. Why people want to say to me "I've known loss and pain in my life also, so I understand." No! No, you don't understand. You may understand that I'm in pain, that I'm sad. But you can not possibly begin to understand the sadness that comes with loosing a child, anymore than I can understand the pain of divorce. I don't pretend to understand. I don't yearn to get on that level with those who do. My first thought is always, "Wow, that really sucks! I can't imagine." I don't know, maybe that makes me a cold person. But for me to sit here and say that I understand the pain of having my child die from cancer at 5 years old, after I've had a chance to get to know this child, their personalities and have made countless memories with them is misleading and grandstanding. I do not know that pain. I only know mine. I only know the pain of having what I understood to be a healthy and uncomplicated pregnancy for six oblivious months that turned into a stillborn little boy who died from complications with Down Syndrome. And I can not assume to know what it is to have a child with Down Syndrome, mine died before I ever got to know him. Another DBM blogger (and I am so sorry I can not remember who it was) compared the understanding of the pain of a baby dying with someone who tried to assume that they could understand based on the fact that their child almost died something in the form of this: "It would be like looking over the edge of the cliff at the churning murky waters and imagining what it would be like to drown. I don't imagine what it is like, I know what it is like." Thinking of how you would feel in that situation is so far from the reality of what it is that it becomes and insult, at least to me, for people to tell me that they understand...because they have known pain? I sprained my back once, but I can not fathom how it would feel to break it. I have been burned, but I can not fathom what it is to be on fire. I have been dumped by boyfriends in the past, but I can not begin to fathom the pain and rejection that comes with divorce. I just wish people would stop trying to understand and spend more time listening, nodding and admitting that they have no idea what I am going through, how I must feel, or this kind of pain. So much more pain could be avoided, I could stop feeling like I need to cower in the corner and protect my already damaged heart from those who love me. I didn't just loose a baby. When Logan died, everything that is ever connected with a child, with a person, died also. My hopes and dreams for him. The plans I made as a mother with a 16 month old and a newborn. The thoughts I had of my son and his daddy fishing, playing ball, building Lego castles. The thoughts I had of my daughter being a big sister, of my son being the first grandson to my mother, the first nephew to my brothers. The day dreams of my son learning and growing beside his grandfather. Thoughts of him as he grew, the person he would become, the life he would lead. The idea that there was this little man who I was in charge of forming and shaping and molding into a loving man, husband and father. That maybe I could somehow get retributions for the hole that my father put in my chest by helping to mold this young man into a great man. Do people think about those things when they tell me they understand? And not just say they understand but actually try to argue and convince me that they really do understand. Do they know that each and every time I see my husband holding a little boy, talking to a little boy or even looking, himself, at a little boy that my heart shatters again and again? That my heart shatters for the pain that is my husbands. Pain that I feel responsible for. Pain for not being able to understand what it is like for him, as a man, to have lost his son, and all of the hopes, thoughts and dreams that he possessed? Do not fool yourselves into thinking that you understand. Though pain and sorrow may be comprehensible to many, the pain and sorrow of loosing a child is beyond the understanding of anyone who has not walked this lonely heartbreaking path.

The problem with me though, maybe I'm being too judgy. I leave little room for others to make mistakes and hold people to the same standards of which I try to hold myself and I know that is a serious fault that I have. I know that, mostly, people are trying to find their own way, that they are sad and confused also. There is little else in this world that is more confusing and heartbreaking than the death of a baby. I understand that people falter because of this. And for the general population I will usually let it slide. People say stupid things when they are nervous. Anyone who knows me in person knows that I am the queen of this fault. I suffer from foot in mouth disease. My issue is more personal. My issue stems from holding to those standards the people who love me. Love me. I am aghast that anyone would want to argue about my sorrow with me, much less those who are supposed to love me. I can not help but to be judgy of those people. I did not realize that I was so judgy until recently. I've always been boastful about the way that I am not in denial of who I am, the faults that I have. Up until a few days ago no one would dare call me judgy (probably because they're afraid of being attacked). My new friend called me judgy one day. The thing is, I actually like her more because of it. I am so tired of fluff. I'm tired of asking people how I look only to hear that I look fine when I know that I have toilet paper stuck to my shoe and lipstick on my teeth. Why is it that people find it so hard to be honest? The fear of rejection perhaps. If I tell you what I really think, will you still like me? Anyhow, my new friend (coincidentally, a fellow mom in the pits) has right to think me a stalker, since I behave more like an obsessed school girl than anything (much to my husbands amusement). The thing is, she has a confidence in me that those who truly know me, wouldn't bother with. Its nice to be with someone who is so full of optimism for you that hasn't been tainted by years of recognition. She is my consolation prize. Don't get me wrong, knowing that I wouldn't have met her acquaintance had Logan survived, the circumstances of our friendship does not make me begrudge the gift that I see it as. Its refreshing to be with someone who is such an intrigue, who seems so mysterious and brilliant, someone who seems enthusiastic about life even in the wake of losing her own children. Its comforting to have someone in your corner who's foundation holds similar stones as your own foundation, and yet their structure is so completely different you find your self staring in awe. If I were asked about the good that has come from Logan's death, it would be making a new friend. A normal, not loony friend. Be advised though, it is not wise of you to point that out for me. I do well in finding what little good I can in the death of my son and I will be damned if someone else points it out for me.

This post was really long. I didn't realize I had so much pent up inside these days. I try to empty the "bottle" often so that I don't explode. However, lately I find more comfort in denying that I am being affected. It is easier to not deal with all of the crap that I feel pushing down on me than it is to stand up and call it out. It is easier to not admit when someone hurts you, than to show them your cards. My mother said that I keep my cards close to my heart. Isn't that the golden rule? Never let them see you sweat? Never let them see you cry? Don't wear your heart on your sleeve for someone to come along and knock off. Its easier that way. At this point in my life, I have enough going on with out trying to wade through the muddled mess that is the psychobabble and ignorant bible thumping that seems to want to come my way on a fairly regular basis.

Now, get off your lazy bum and help me find that armor. I know its around here somewhere...

Courage at the keyboard

Maybe its the year mark. Maybe people feel like enough time has passed now and that they should be granted the freedom to speak their mind, regardless of how it rips open my (very shoddily patched up) broken heart. Maybe people are just that thoughtless. Maybe people find courage at their keyboard the way so many find it in a bottle. I do not know.


I do know this...


It has been a year (almost 13 months to be exact). And no, enough time has not passed for comments such as:


"...not let the loss of Logan be wasted, a missed lesson & understanding, in vain. There's a reason, and God wanted you to find Him in it! God...the Author of life."


There's no point into going into the rest of the argument, and I am not taking this opportunity to bash the person who wrote this, or their beliefs. I will clarify that I do not believe that my anger at God (mind you, not for my son's death, but because he was created using a bad egg knowing full well his demise) will cause the loss of my son to be a waste. I do not believe that God allowed/caused/didn't prevent my sons demise because he wanted to teach me a lesson or understanding, thus I am not sure how his death would be in vain. In vain of what exactly? I do not believe that there is a reason, and I do not believe that God was using this to prompt me to "find" him, and since he is all knowing...he would've known this and that it would have been a waste of time.

The point here is, more or less, a big fat WTF?? I am grappling with the understanding as to why some find it their duty to explain God's mission. Why they are the self appointed ambassador's of his great wisdom. I know that so many turn to faith in the midst of their grief, and I think that it is a wonderful thing...for them. I wish I had the sort of faith that prompted me to run to God for comfort. But I don't. And I really am struggling with why there are so many people out there who are so quick to condemn and shame grieving people when those who are grieving falter in their faith, blame God and are honest in their anger. I could have worn a mask of false faith. I could have pretended to "run to God" or "give it to the Lord" as so many have suggested. I didn't. I have been up front and honest about my lack of faith, anger and questioning of faith. And yes I scoff and roll my eyes at the simple idiocy so many paint God into. I believe and accept the basic principles of Christianity, I just question its ambassadors and their self important need to "comfort" those who are ear deep in a pain that so few can begin to fathom.


Someone said the following to me once. It helps to feel like there are believers out there who aren't all gung-ho trying to argue God's case for him and accept that grief can not be argued out of. I found the words to be profound, and felt like for once an outsider might have actually gotten it.

People really upset me when they don't have enough knowledge to explain things, and they try to make up crappy excuses as to why God "does" something. Who says God "does" everything? And really? Do we have God all figured out to know Him so well as to know what He's thinking and if He's blessing somebody to say these "words of comfort"? People shouldn't preach and try to say something if they don't know enough of what they're talking about. It sours everything, it's NOT the order in which things are supposed to be handled. I'm sorry that you have become the receiver of this kind of treatment, that would get real old, real fast. I am sure, they were talking out of frustration in the argument and not even thinking about everything they were saying, using God to prove that they are right. That you shouldn't be mad at them for what they said, since it was of God. Sure, they believe in and love God, and in their heart they have the faith to put certain situations in His hands. But that's them, and it's a childlike faith. Which of course we are supposed to
have. But for heavens sake, there is a lack of wisdom in trying to win over one who is heart-broken in the middle of an argument and for the benefit of sticking up for God. Sometimes I wish I could get that through people's heads. God doesn't need us to "stick up" for Him. He'll deal with things in His own time and in His own way. WE need to quit getting in the way.


Anyhow...

I have been feeling very attacked lately, on several fronts. And I don't get it. The only thing I can conclude is that the general population must think I am "milkin' it" and that after thirteen months I should be well on my way to creating that replacement baby, forgiving God, and moving on. And in my own ways I am. Life is much different for me now than it was even 6 months ago, three months ago. But I still feel the pulsating emptiness that is my son's spot every waking moment of my life. The thing is, I haven't asked for anything from anyone. And all I've really desired in this whole mess is to be left alone by those who can't find it in their selfishness to step aside and let me be. Why is it that I feel like it is expected of me to comfort them? Especially when I never asked comfort of them, only space, and a request that has been denied time and again. I don't know, maybe its selfish of me to not have the time, space or desire to handle or care of the (what I now feel to be) mundane idiocy of those around me. When Logan died it became very apparent to me that I had to use every ounce of energy and strength I possessed to not fall off of the deep end, and I stopped caring how that affected anyone else. And, call me selfish if you will but, I still do not have the strength, desire or will to tolerate or empathize with the drama and chaos of the lives of those around me. Its like I feel as though I am using all of my available resources to keep it all together, to hold myself intact so that I do not explode into a million pieces of sorrow and disappear into the inviting depths of my despair. And if I let one of those resources slip, then all will be lost. The hardest part is that so often the majority of the insult has come directly from those closest to me. Those I depended on to hold on to me, prop me up, save me. This is where I feel the most let down. The few people who should be on my side, are the ones attacking. And the ones on my side, the ones who ended up being the ones who truly held me up, they are all complete strangers. Strangers who relate and "get it" because they've felt this pain, they've stuck around to say "Hey, its ok. You're normal, this is all normal. You'll survive, I did." It adds a new dimension to my pain. Its become so obvious to me why so many become reclusive and alienate themselves after a great loss. I feel that I can only handle so much. I feel as though I am skittish of that final straw. It makes me angry and loathsome and gives me the desire to lash out at people who must feel as though they are being thoughtful and well meaning. It leaves me confused, flabbergasted and appalled. It leaves me just a little sadder than I already was. A little more frightened. A little more fragile, and a whole lot more likely to close myself off from a world that wants to injur my heart further.

The Baby Shower and the Blonde Toddler

So. I went. I survived. I assumed I would. I'm glad it's over. It was uneventful, and just to make sure that my heart didn't go unabused during the event, the universe thought it appropriate to have someones newborn baby boy there. Oh thank you. So. That was that. I came home, ate two candy bars and drank a Slurpee for dinner and tried to zone out to Into the Wild and pretend I didn't just do what I did. I didn't cry. I just...pouted I guess. It just made the day seem gray and ugly (it was scorching hot and sunny).

Yesterday my DH and I were out garage saling with the muffin. At one sale my DH was leading the muffin around by her hand and a toe headed toddler boy walked up to him and held his other hand and walked around with him.

I can't make this crap up!

The universe is trying to do us in. I always pictured Logan as a toe headed toddler...just like his daddy was. So, I got to see what it could have looked like. The muffin on one side, the toe head on the other...my husband (with a heart on the verge of breaking) in the middle. It took my breath away.

I just wanted to go to the zoo

I read this today and it got me to thinking about my trip to the zoo over this past weekend.

I took the Muffin to the zoo (you can see pic's here) on Sunday with my cousin and her family. I like to experience new things with my daughter and I was excited to go and see her 18 month old reaction to all of the different animals (and I was not disappointed). The thing is, we hadn't been there but a few minutes, when I got punched in the face again. I say punched, because I still feel like it's a sucker punch, and not a pang or a twinge or something less harsh. We were in the aquarium. It was large, but not huge. Still, a good size and packed to the gills (no pun intended). I'm hanging out with my Muffin, holding her up so that she can check out the fish and other sea creatures and my cousin is nearby. We're talking and chillin' and pointing and enjoying ourselves. And then...


"Logan! Get back here!"


I couldn't help it! I looked. I had to see what he looked like. Dark hair, maybe 4 or 5, typical little boy. Why?? Why now? Why here? I'm just trying to enjoy my time at the zoo with my daughter.


I hate that I noticed. And I hate that my cousin noticed that I noticed. I hate that I had to text my DH and tell him. I hate that I thought about him all day, that I missed him even more, that I wondered what that day would have been like with him there too. Wondered if I would have even been there since he should have technically only been 2 months old.


Of course it seemed like they followed us around all day as our paths crossed several times. The Toledo Zoo is not small! Hearing it once should have been weird enough, but hearing it a dozen times that day?? Well, that's just the universe being cruel to me again.


It changes us, this grief. It changes how we enjoy things, how we see things. It changes how we talk, how we listen, and how we feel about life in general. I wasn't prepared for that. I wasn't prepared for any of this, but I certainly didn't realize how grief was going to change me, how it continues to change me, to shape who I am and how I behave.


I just wanted to go to the zoo with my daughter.

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