"You get what you pay for, but I just had no intention of living this way." -Counting Crows
Why We're Here...
My husband David and I delivered a stillborn Baby Boy that we loved, and wanted. Our first and only son, Logan, had Down Syndrome. Our daughter's smile is a little light in the darkness. She turned one year old three days after our sweet Logan tip-toed away on January 24, 2009. After 2 1/2 years we found out we were having another baby, whom we affectionatly called Rudy. Just shy of 6 weeks we found out Rudy was Ectopic. Rudy was surgically removed on May 26, 2011 delivering another blow to our already broken hearts.
You know, I've always been one to measure my life in milestones. I'll think to myself, "Wow, I've been with my DH long enough I could have gone through HS almost four times!!" Weird things like that. Anyhow, I find that I do that with Logan too. When it was winter I kept thinking if I could get past the winter things would be better. It would be a new season, it wouldn't feel the same. And here I am, faster than I can blink, knocking on the door of autumn...winter fast approaching...again. Its a strange feeling, how fast its all going. Seven months have come and gone. Three seasons. Winter. Spring. Summer. Fall is usually my favorite time of year. And though I am still feeling that old familiar prick of excitement in a hazy far off sort of way, I'm dreading what it means...and longing so much for it to go by quickly on one hand (to be past that scary one year mark with Logan) but for it to slow down because it's passing faster than I can comprehend and my daughters very short, and very endearing baby/toddlerhood is flying past and I feel like I miss so much and that I don't want to forget anything!!! (How's that for a run on sentence!?) It is bittersweet in it's truest form and ever so confusing for me. I just want to get as far away from this pain and these memories as I can. They keep telling me, "the salve of time" so I'm running for the salve with all of my might. But I feel so conflicted because I know that I spend a lot of my daughters life in mourning. And it shouldn't be that way for her. And it makes me sad. And I want it to be over with. I want to be here for her 100% and not with half of my mind wandering through dark alley's when I see her do something new and exciting! So as this winter comes screaming up on me, yes I get to get past the 1 year mark of my devastation...but it also means my daughter will be two, and I feel like I have missed out on so much of these last several months.
According to my ultrasound it does
appear that I have PCOS (Polycystic Ovarian Syndrome) since my ovaries are loaded with cysts. I won't be seeing the doctor until Sept 10th for all my results (from blood tests and what not). I'll know more then. I have started the Pill, much to my dismay. However, like my husband said to me "We won't be having a baby while you're messed up either." So, I'm trying all I can to get "fixed". I've done some reading on PCOS and see that eating a "clean" (unprocessed food) and Organic diet to aid in controlling the hormone jig the cysts seem to have my body in. That is proving to be difficult to do cold turkey, so I've decided to phase out the enormous amount of processed food in my home, and to try to buy Organic when I can find it. Meat and Dairy seem to be the most important, but I'm having trouble finding local organic meat. I did find a service that delivers organic fruits and veggies (
www.doortodoororganics.com) to my home at no extra cost. And according to my 2 Organic friends, their prices are very competitive. And hey...they bring it to me!! I like that. I have another friend who's mother has access to organic beef, so she said next time she goes to get some she'll let me know (it's a couple hours away). But I'm still looking for eggs and cheese. I just finished reading the book
Master Your Metabolism by J. Michaels and it is all about how to control your hormones using unprocessed and organic food and products. I found it worth the read. Anyhow, I'd love to hear from any of you who have PCOS and know more of what its about (aladyontheverge at gmail dot com). I'm relieved to finally be moving in a direction that is going to help get myself under control again. Apparently PCOS causes depression, weight gain, facial hair, fatigue and a list of other "issues" I've been fed up with for some time. So...moving forward, one step at a time.
I survived the U/S with out tears. I got pretty worked up in the waiting room. My tech read my file and then started in on how sorry she was, how awful it is...and that she lost a baby at 12 weeks so knows its really a hard thing. She was super nice and I enjoyed her chatter. But being in a different place, with a different tech, under different circumstances helped it not be such an ordeal I think. I was grateful for that.
So tomorrow morning I go in for an ultrasound of my ovaries to check for the possibility of cysts that could indicate PCOS. Just more hormone checking I guess. The pathetic thing is that I'm more anxiety ridden over going through the ultrasound process (ON MY UNPREGNANT BELLY!!) than I am about the potential of having the incurable PCOS. The thought of laying there with my belly exposed going through the same routine I've gone through when there was a baby in there, except that now I'll get to see that for sure there isn't one in there...well, its just one more reminder that I'm no longer pregnant...and to go along with the birth control I've recently started to use to help regulate my hormones (with the horrifying side effect of baby prevention!!)...well, lets just say its a wonderful little reminder of what is no longer, what isn't currently, and what won't be for a positive minimum of three months while trying to straighten out my hormones. Ooh yay! Hello Monday.
Cincinnati was wonderful. We had a really nice time. The aquarium we visited was pretty cool and our daughter seemed to have a really good time, which makes the sun shine on my world, even amidst the tornado watches and rain.
I'm having a pretty good week. And this week things seem to be easier to handle. I say this week because I have noticed in the past that the moment I say things are getting easier, they get a lot harder. So, like I said...this week has been easier. I was able to see a few little boys and not feel like I'd been stabbed. I even heard Logan's name called twice while in Cincinnati. And though I noticed, and though it made me wistful and yes there was a pang, it didn't make me feel like I was going to have a melt down. Progress. This week.
I've been having a lot of headaches the last several days. I'm trying to go organic and unprocessed in my diet in hopes of feeling better with the depression and hormones. However, I'm a carb addict, and I love my Sunkist. The caffeine is kicking my butt (or the lack thereof) and I'm trying not to take too many Excedrin (which contain caffeine) but with a toddler at home I just can't go cold turkey on the caffeine and suck up the headaches till there gone (usually three really nasty days). Anyhow, I'm hoping eating better will start to straighten things out and help me to feel better...or at least not so bad.
So I had my OB/Gyn appt today to have a look at my hormones. She drew some blood and the results will be back in about 3 weeks. She says it sounds like they're off. I go in on Monday to have an ultrasound done on my ovaries to check for cysts (PCOS) which could be wrecking havoc on me too. She wants me on birth control for three months. Yazz. Sigh. BIG SIGH. I know we're not planning babies. I know. But what if?? What if he changes his mind and the BC keeps me from getting pregnant for a long time?? Not to mention all of my other issues with birth control, and I have a lot of them. But she swears that it'll help with the depression and all of the other "side effects" of grief and babyloss and the post partum kick in the rear we all get that messes up our hormones. I'm still debating. I don't want to live like this anymore. This depressed hormonal mess if I don't have too. If it's not natural. She says she doesn't think I have any more depression than I "should" and she also said it hasn't been nearly long enough. Apparently seven months isn't long enough to grieve a dead baby. I guess I'm glad a doctor said that. Makes me feel less abnormal. She also said that I could get chromosomal testing done on myself which would give them a better look at the likely hood of having another baby with chromosomal issues. I'm not sure I want that sort of info. And when I told her that we wouldn't do any testing once we conceived because we wouldn't terminate under any circumstance (which seemed to surprise her) she said that she wouldn't recommend extensive testing then. I like her. She was upbeat and funny. When I told her I thought I had excess body odor she said "I don't smell anything" and then she laughed and told me that was a hygiene issue, but she was joking then too and said its just part of getting older. The office is very clean and updated/modern looking, something I couldn't say for my last doctor. I like that too. Makes me feel like they're more up to date in all things, though I know that's a foolish way to feel.
She read Logan's autopsy report. She said that the report's final diagnosis to Logan's demise (since he didn't die from having Down Syndrome) was "etiology uncertain" (which means they are not certain of what caused his actual death). She said she doesn't understand why they wrote that. According to the report Logan's organs shut down. This is what can happen with children who have DS. Everything is retarded. He basically had an overall system failure. No one thing caused his death but a combination of several. SO they couldn't point and say that his heart failed, or that his brain failed, or whatever. It all failed. When I mentioned to her the odds about conceiving another child with DS she said that those were pessimistic odds and that she had never seen nor heard of anyone having two children with DS, but that she herself has had a few patients go on to have "healthy" children post DS. She mentioned a current patient of hers in her late 40's. Her first baby was born around 40 and had DS, her second child born years later was perfectly normal. She even seemed very eager for my DH and I to get back up on the horse and TTC again. That might be the D.O. uber-OB in her talking.
I cried. I wasn't sure if I would or not. I've been having a few ok days lately so I thought I'd be in the clear. Laughable. I was trying to tell her about my face twitching (my tick!) and I burst into tears. She said the twitching was stress (since it comes and goes). And when I told her that I was irritable and argumentative she said "don't you have the right to be so?". Did you hear that hunny??? I have the RIGHT to be a jerk!! LOL! Seriously though, I didn't want to be there. Thankfully there was only 1 pregnant chic I saw in passing. Which is good because if we'd have started talking and she'd have asked questions I don't know that I would have been able to refrain telling her that mine died. Which would have been cruel to her. Monday I go in to get an ultrasound done on my ovaries to make sure there are no cysts. I'm hoping being there with a few pregger chics (who I am sure will be there),the ever familiar ultrasound and the whole process won't ruin me.
The hubster and I and our little muffin are heading to Florence, KY for a few days starting tomorrow. Just a mini-vacation is all. A chance to get away and not just to family or friends houses. To actually GO somewhere. I'm excited. I know he's excited too. It should be a fun few days and I am hoping for the best. If nothing else, I'll appreciate the adventure and chance to get away from everyday ho-humness of life.