"You get what you pay for, but I just had no intention of living this way." -Counting Crows

Why We're Here...

My husband David and I delivered a stillborn Baby Boy that we loved, and wanted. Our first and only son, Logan, had Down Syndrome. Our daughter's smile is a little light in the darkness. She turned one year old three days after our sweet Logan tip-toed away on January 24, 2009. After 2 1/2 years we found out we were having another baby, whom we affectionatly called Rudy. Just shy of 6 weeks we found out Rudy was Ectopic. Rudy was surgically removed on May 26, 2011 delivering another blow to our already broken hearts.


Hormones

So I had my OB/Gyn appt today to have a look at my hormones. She drew some blood and the results will be back in about 3 weeks. She says it sounds like they're off. I go in on Monday to have an ultrasound done on my ovaries to check for cysts (PCOS) which could be wrecking havoc on me too. She wants me on birth control for three months. Yazz. Sigh. BIG SIGH. I know we're not planning babies. I know. But what if?? What if he changes his mind and the BC keeps me from getting pregnant for a long time?? Not to mention all of my other issues with birth control, and I have a lot of them. But she swears that it'll help with the depression and all of the other "side effects" of grief and babyloss and the post partum kick in the rear we all get that messes up our hormones. I'm still debating. I don't want to live like this anymore. This depressed hormonal mess if I don't have too. If it's not natural. She says she doesn't think I have any more depression than I "should" and she also said it hasn't been nearly long enough. Apparently seven months isn't long enough to grieve a dead baby. I guess I'm glad a doctor said that. Makes me feel less abnormal. She also said that I could get chromosomal testing done on myself which would give them a better look at the likely hood of having another baby with chromosomal issues. I'm not sure I want that sort of info. And when I told her that we wouldn't do any testing once we conceived because we wouldn't terminate under any circumstance (which seemed to surprise her) she said that she wouldn't recommend extensive testing then. I like her. She was upbeat and funny. When I told her I thought I had excess body odor she said "I don't smell anything" and then she laughed and told me that was a hygiene issue, but she was joking then too and said its just part of getting older. The office is very clean and updated/modern looking, something I couldn't say for my last doctor. I like that too. Makes me feel like they're more up to date in all things, though I know that's a foolish way to feel.

She read Logan's autopsy report. She said that the report's final diagnosis to Logan's demise (since he didn't die from having Down Syndrome) was "etiology uncertain" (which means they are not certain of what caused his actual death). She said she doesn't understand why they wrote that. According to the report Logan's organs shut down. This is what can happen with children who have DS. Everything is retarded. He basically had an overall system failure. No one thing caused his death but a combination of several. SO they couldn't point and say that his heart failed, or that his brain failed, or whatever. It all failed. When I mentioned to her the odds about conceiving another child with DS she said that those were pessimistic odds and that she had never seen nor heard of anyone having two children with DS, but that she herself has had a few patients go on to have "healthy" children post DS. She mentioned a current patient of hers in her late 40's. Her first baby was born around 40 and had DS, her second child born years later was perfectly normal. She even seemed very eager for my DH and I to get back up on the horse and TTC again. That might be the D.O. uber-OB in her talking.

I cried. I wasn't sure if I would or not. I've been having a few ok days lately so I thought I'd be in the clear. Laughable. I was trying to tell her about my face twitching (my tick!) and I burst into tears. She said the twitching was stress (since it comes and goes). And when I told her that I was irritable and argumentative she said "don't you have the right to be so?". Did you hear that hunny??? I have the RIGHT to be a jerk!! LOL! Seriously though, I didn't want to be there. Thankfully there was only 1 pregnant chic I saw in passing. Which is good because if we'd have started talking and she'd have asked questions I don't know that I would have been able to refrain telling her that mine died. Which would have been cruel to her. Monday I go in to get an ultrasound done on my ovaries to make sure there are no cysts. I'm hoping being there with a few pregger chics (who I am sure will be there),the ever familiar ultrasound and the whole process won't ruin me.

The hubster and I and our little muffin are heading to Florence, KY for a few days starting tomorrow. Just a mini-vacation is all. A chance to get away and not just to family or friends houses. To actually GO somewhere. I'm excited. I know he's excited too. It should be a fun few days and I am hoping for the best. If nothing else, I'll appreciate the adventure and chance to get away from everyday ho-humness of life.

4 comments:

Carla said...

((((hugs))))) Heather.

Michele said...

Oh Heather, I dont know if any amount of time is "enough" to grieve. Some days, the grief takes a back seat and other days, it is front and center. Just one day at a time. That is all you can do.

As to the PCOS (which I have), have you considered seeing an endocrinologist who specializes in it? That was a huge help to me.

Sending hugs...

Emily said...

Sounds like your OB was full of good news! I'm glad you found one you like, who isn't treating you like fragile glass (those stink!). It's so much nicer when they're real.

Holding your hand as we walk this journey together....

Mary said...

Heather I hope the time away brings you moments of peace. It's in the moments that we begin to heal. At first they are sporadic and then they come more often. But it does take time. We have just begun this journey. I believe we will be on the other side of this road.

Your doctor sounds like a doctor I would like to have.

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