My husband and I thought it was very important to have an autopsy on Logan since there was no warning that there was a problem until he was already dead. We were advised by the Diagnostician to have Logan sent to University of Michigan to have a complete autopsy done sine the one the hospital does is on the brain, and not the whole body. But, to do this we had to just accept the terms laid down by UofM. If we wanted UofM to do the autopsy we would not get his body back. He would be cremated in a mass cremation with other babies, and his ashes would be placed in a vault with other babies in a plot that UofM had commissioned at a memorial garden nearby. At the time nothing else mattered but to know why he died. We needed to know if it was something that could or would show up in my daughter. If it was likely to happen to the next baby. If it was genetic, hereditary, cultural. We both were desperate for answers. Though I am horribly bothered by the fact that my son will be cremated (the whole burning thing wrecks havoc on my mind) and I am bothered that I don't have control over where he is or will be. I try to find peace in knowing that he is with other babies in the same situation. I have to be honest in admitting that it does bother me. But I really felt like we needed to know, and never in my wildest dreams did I think it would be something as "simple" as Down Syndrome (which was discovered through the amnio the day I gave birth). Though, we were told that Logan did not die from DS itself but rather a complication due to DS, and most likely a heart condition. We do still want to know every possible fact. I don't regret my decision. I just wish I could have had it both ways, the autopsy and his body. I would have liked to have chosen his resting place. We were told that it would be several months before the autopsy results would be ready, so I assume he is still at UofM (2 months later). Either way though, Logan would have been cremated if he would have had an autopsy. And we needed an autopsy. But, the hospital would have at least given his body back...though with out as thorough of an autopsy. We will be attending a memorial service put on by UofM later this year.
Why We're Here...
What are your plans for Logan's remains?
My husband and I thought it was very important to have an autopsy on Logan since there was no warning that there was a problem until he was already dead. We were advised by the Diagnostician to have Logan sent to University of Michigan to have a complete autopsy done sine the one the hospital does is on the brain, and not the whole body. But, to do this we had to just accept the terms laid down by UofM. If we wanted UofM to do the autopsy we would not get his body back. He would be cremated in a mass cremation with other babies, and his ashes would be placed in a vault with other babies in a plot that UofM had commissioned at a memorial garden nearby. At the time nothing else mattered but to know why he died. We needed to know if it was something that could or would show up in my daughter. If it was likely to happen to the next baby. If it was genetic, hereditary, cultural. We both were desperate for answers. Though I am horribly bothered by the fact that my son will be cremated (the whole burning thing wrecks havoc on my mind) and I am bothered that I don't have control over where he is or will be. I try to find peace in knowing that he is with other babies in the same situation. I have to be honest in admitting that it does bother me. But I really felt like we needed to know, and never in my wildest dreams did I think it would be something as "simple" as Down Syndrome (which was discovered through the amnio the day I gave birth). Though, we were told that Logan did not die from DS itself but rather a complication due to DS, and most likely a heart condition. We do still want to know every possible fact. I don't regret my decision. I just wish I could have had it both ways, the autopsy and his body. I would have liked to have chosen his resting place. We were told that it would be several months before the autopsy results would be ready, so I assume he is still at UofM (2 months later). Either way though, Logan would have been cremated if he would have had an autopsy. And we needed an autopsy. But, the hospital would have at least given his body back...though with out as thorough of an autopsy. We will be attending a memorial service put on by UofM later this year.
Unpleasant surprise
Sent via BlackBerry from T-Mobile
Under the Tree Questions for February
Too much worrying...
Sobbing & Cardio
They don't deserve kids!
Random BS!
ardently desire,
sincerely believe,
and enthusiastically act upon...
must inevitably come to pass!
-Paul J. Meyer
...if only that were true.
.
And just because I wasn't blue enough...
Sigh...
Just to clarify...and boo hoo some more!
I don't know what my problem is. I mean, any more so than any other given day. But these last few days I can't shake it. I feel engulfed by darkness. Not just the weepies and boo hoo's...but dark, scary, all encompassing, hell-like feelings. Maybe it's what real depression looks like. I don't know. But it scares me. I don't want to go there. Ever see the movie with Robin Williams "What Dreams May Come"? That place. Where the wife is. That's where I am. I hate being here.
"No Address in the Stars" - Caitlin & Will
chorus: What do I do with all I need to say? So much I wanna tell you everyday. Though it breaks my heart, I cry these tears in the dark. I write these letters to you but they get lost in the blue, cause theres no address in the stars.
verse 2: Now I'm drivin through the pitch black dark. I'm screaming at the sky oh cause it hurts so bad. Everybody tells me oh all I need is time. Then the mornin rolls in and it hits me again. Light. Aint nothin but a lie.
chorus: What do I do with all I need to say. So much I wanna tell you everyday. Though it breaks my heart; I cry these tears in the dark. I write these letters to you but they get lost in the blue, cause theres no address in the stars.
verse 3: without you here with me i dont know what to do id give anything just to talk to you though it breaks my heart oh it breaks my heart all i can do is write these letters to you but theres no address in the stars
Because sometimes flowers make things better, if even only a little.
Logan's Tiny Tag
Barb was sweet enough to display Logan's Tiny Tag for the whole world to see. I just love seeing his name.
DEAL WITH IT!!!
Another cosmic kick in the teeth...ok, that's a tad dramatic.
Now if there's a smile on my face, it's only there tryin' to fool the public, but when it comes down to foolin' you; Now honey, that's quite a different subject. But don't let my glad expression give you the wrong impression. Really I'm sad. I'm sadder than sad. You're gone and I'm hurtin' so bad. Like a clown I pretend to be glad. (chorus) Now there's some sad things known to man, but ain't too much sadder than the tears of a clown when there's no one around. Now if I appear to be carefree, it's only to camouflage my sadness. In order to shield my pride I try to cover the hurt with a show of gladness. But don't let my show convince you that I've been happy since you decided to go. Oh, I need you so. I'm hurt and I want you to know. (chorus) Just like Pagliacci did, I try to keep my sadness hid. Smilin' in the public eye while in my lonely room I cry the tears of a clown when there's no one around.
No Lupus
By the way, the doctor who originally sent me in for Lupus testing called me the other day. I don't have Lupus. My other OB, the one who thought that I did, is apparently an idiot and misread the tests results...again. He's done that a lot lately. So, I fired him. Three weeks before my yearly check-up. I was affraid he'd tell me I had cancer next...and then I wouldn't. I can't take any more drama. I'm glad I didn't give this Lupus thing a whole lot of thought. Seriously, I feel like the universe keeps saying...
Phsych!
The Baseball Bat
I thought…
Hours went by. I didn’t think about the incident but once or twice. We had lunch, played Rummy Royal with the in-laws (for 6 ½ very annoying hours!! No game should be played that long!) had dinner, came home and watched TV. And all was well. I thought. And there we were watching House, M.D. and enjoying our Saturday night like married folks do (watching TV) and at the very end of the show a woman says…
“Children are resilient.”
And I thought;
“Not always.”
And that was the end for me. I had a melt down. A c o m p l e t e melt down. The kind I haven’t had in about 5 weeks or so. I still cry here and there, but not like this. David said “It’s alright for you to talk about Logan with me” and all I could think of was “why?” Why bother? It doesn’t fix it, it doesn’t change it, it doesn’t make it go away. What is there to talk about? I miss my son desperately, or as someone in blog land so eloquently said it, I miss the promise of my son. And it’s final. There’s no hope that he’ll ever come back. Final. No hope. No slight chance that things will change and that one day I might not have this gaping hole. And the only one I can really share that with is David. No one else knows Logan. No one knows what his tiny mouth looked like, no one knows what his little ears looked like, no one else knows anything. It’s like a figment of my imagination, and David is the only one who got to be a part of it. When someone lives, and then dies, most of the time you have something. Pictures, memories, other people who witnessed their existence (I’m speaking of take home babies here) there is a tangibility to them. There is something. When there is a miscarriage there is no tangible evidence (usually). There are no pictures, no physical memories (like blankets, what their mouth looked like). There is nothing. So you either have something…or nothing. There isn’t an in between. But with stillbirth…you’re in between. You don’t have something, but you don’t really have nothing either. The something is that you saw that baby. You held that baby. You knew that there was, in fact, a real baby. Seeing is believing, right? The nothing is that chances are you don’t have pictures (at least ones you hang on your wall or keep in your wallet) you don’t remember their voice or cries, the way they opened their eyes. You don’t have real memories. You have a dead baby that you saw, who sort of resembled you or your spouse, but was probably red, had peeling skin and was ultra tiny (assuming the still born child was premature like mine). You have a physical memory of holding a baby. But there was no soul in that baby. The baby never cried. The baby didn’t really have a birthday. But the baby was there. There’s something, and nothing. And I am having such a hard time getting a grip on it. I can’t get my head around how you can have something and nothing at the same time. I’m not saying I wish I would have had a miscarriage, because I know if I would have I would have wanted more time, some physical evidence, a desire to have seen my child. And I’m not saying I wanted my son to be born alive only to get those memories and have him torn from me. And I’m not trying to discount anyone else’s pain and suffering; those who’ve had babies live only to die, and those who’ve had miscarriages, pain is pain and everyone has a loss to contend with, please don’t think that I am discounting anyone’s pain. I just can’t grasp where it is that I am. I can’t grasp what has happened to me; let alone what has happened to anyone else. This all came crashing in on me last night. And I blathered on and on about it. And I know none of it makes sense. The feelings that I have don’t make sense and trying to have them make sense for others is very difficult. It’s just that I have something and I have nothing and I don’t know what to do with it. The same goes for having my daughter. So many people go through this nightmare and never come out with a live baby at the end. I am so lucky, blessed, whatever you wanna call it, to have a living daughter before I endured the horror of having my son die. I should feel blessed. I should feel lucky. Because I am. And when I look at her I see that, and I know that, and I feel that. But then I think about my son, I don’t feel lucky or blessed. And then I don’t feel like I have a right to feel that way because it could have been so much worse. And I was lucky, or blessed, that it wasn’t. But, the joy of my daughter does not negate the intense sorrow of my son. So much of what I feel these days is conflicting. Something and nothing. Blessed and damned. Alive and dead. Happy and sad. Wistful and angry. I don’t recognize myself anymore. This grief is changing me on a daily basis. And all I could say at the end of my melt down is that I just want it to go away. I don’t want the anger or the sadness or the gaping hole in my heart. I don’t want the memory of a son who was never mine. I don’t want the knowledge that I have. I don’t want the sorrow for a little boy who came and went on the same day. We were fine before Logan. Why couldn't we just stay that way? I’m not sure what the purpose of his existence even was. What reason, what lesson can justify the amount of pain I feel? Ok, sure, God saved Logan from a lifetime of suffering. And for that I am grateful. No mother wants their child to suffer and would go through any amount of pain and suffering herself to prevent her child from having to do so. But since I believe that God is the only creator of life, what reason did he choose to create a life in Logan, only to take it away so soon? What reason could there possibly be? I know there is no answer to this. And this is where I am again…denial, anger and questioning.
David made a good point to me last night. I said that Logan would have been 7 weeks old, and he said “No he wouldn’t, because he wouldn’t have even been born yet.” I’ve never thought about that before. Logan was only born because he was already dead. They induced me after he died. So January 24th, the day he was born dead, isn’t even his birthday. And, it’s not the day he died (they think he probably died on the 21st or 22nd). It’s just the day he left my body. How am I supposed to celebrate that day? He wasn’t supposed to be here yet! There was no birthday. This wasn’t supposed to be 7 weeks after he died…it was supposed to be 30 weeks along. And I’m pissed! And I’m tremendously sad. And I’m confused and scared. I hate that my blog exists, I hate that I know there are people, millions of people, who are parents to dead babies. I hate that we know each other because we share the sorrow of baby loss. I hate that I am not ignorant to this horror. And I hate that I go through life with a plastic smile on my face trying to be for others what they think I should be because they can’t cope with my reality. I am full of screaming. I feel like my entire being is one enormous scream. And I hate that. I hate that my entire life is shadowed by thoughts of a dead baby that I almost knew, but not quite. I hate that I can’t show people pictures of my son because they won’t see what I see. They won’t be able to look past the dark, red, peeling skin and see my sweet, sweet tiny baby boy. They’ll see a horror where they should see such joy. And I hate that I can’t show them pictures of my son. I hate that I can’t share memories of my son, because I have none. Nothing tangible and real. I could show the blanket, but why? I didn’t make it, I didn’t buy it and I didn’t pick it out. Some sweet volunteer made that blanket, and the nurses wrapped him in it. It wasn’t his blanket. It was a blanket for a dead baby. I have footprints and handprints…of a dead baby. I have nothing of a baby that was living. Everything I have of Logan has a horrific fact tied to it. Dead baby. Not a live baby who had living pictures and footprints, and then died. He was already dead. He had been dead for a few days. No one can see past that, especially if I can’t. I’m weary, and it’s only been 7 very long weeks...that flew right by. A second and a lifetime. Something and nothing. Life and death. And all I can do is shake my head in disbelief.
I still can’t believe it.
Ugh!
Seems like a lifetime ago...
Seems like yesterday...
It only hurts when I breathe!
Jason left a comment about my blog yesterday in which he states that he likes my blog title. So, I got to thinking what was the reason for my title? Where did it come from? I remember when I was sitting here trying to think of a title it just popped into my head. It took a split second and when I thought of it I knew it was perfect. So today I decided to search for that phrase online. I'm sure something prompted the title into my head. David and I thought it was a song or something...it sounded vaguely familiar. Turns out, we were right. Shania Twain has a song called "It Only Hurts When I'm Breathing". I'm a country music fan (though admitedly not much of a fan oh her music), so it made sense that I knew this song. I must've heard it around the time I started my blog. Anyhow, I looked it up.
Here are the Lyrics:
Hope life's been good to you since you've been gone.
I'm doin' fine now--I've finally moved on.
It's not so bad--I'm not that sad.
I'm not surprised just how well I survived.
I'm over the worst, and I feel so alive.
I can't complain--I'm free again.
[Chorus:]
And it only hurts when I'm breathing.
My heart only breaks when it's beating.
My dreams only die when I'm dreaming.
So, I hold my breath--to forget.
Don't think I'm lyin' 'round cryin' at night.
There's no need to worry, I'm really all right.
I've never looked back--as a matter of fact.
[Repeat Chorus]
It only hurts when I breathe.
Mmm, no, I've never looked back--as a matter fact
[Repeat Chorus]
Hurts when I'm breathing.
Breaks when it's beating.
Die when I'm dreaming.
It only hurts when I breathe.
So, there you have it. Break up songs. They always fit don't they? The chorus lines anyhow. I thought the chorus of this song fit perfect. I've often felt that if I held my breath... I've added this song to Logan's playlist. If you stick around long enough you'll hear it...or you could just click on the song in the playlist, it'll start playing automatically.
What if it WAS my fault?
I'm gonna write a book...and other projects.
Another project?
I'm gonna write a book. Seriously. Ok, I'm not going to write it since I have no real talent for writing (even if I have the gift of gab). Let's say, I'm going to compile a book. I will name the book:
What's wrong?
Why so quiet?
I've changed my name!
My diet blog
Another rainy day?
Sparrow Farm Creations
The funk
The confusion is confusing!
"The first time anyhow." and "What are the odds?"
If it could get worse...just wait, it will.
Could it get any worse? Sure. It always can. It always does. I got a call Tuesday (in the midst of this chaos and drama called my family) about some blood work my new OB sent me in for regarding the fact that my mom has mini strokes. He wanted to check for a clotting disorder, just in case. If I choose to get pregnant again, this is something they would need to know. So I went. Nothing was wrong with me, and I knew it. I mean, what are the odds? Apparently pretty freaking good.
“Some of the test came back abnormal”
“Abnormal for what?”
“Well it appears that you may have Lupus.”
Oh, is that it? [She asks herself sarcastically] Why not? After all, look at my odds for anything bad lately. So in the last thirteen months I’ve gotten pregnant, had a perfect daughter, got gall bladder disease, had the said gall removed (therefore I have no more gall), got pregnant with a son, was told son was abnormal, had son die, gave birth to dead son, was told son had Down Syndrome and now it looks like I might have Lupus! I mean why not? Bring it on. Because right now I feel like if it could go wrong, it probably will.
A scrapbook page for Logan
The ring
I knew it would eventually happen...
On a different note, part of me wonders if she’s sacred. Being pregnant is scary enough on its own merit, but when you have a friend who just gave birth to a dead baby with a serious defect, that just has to be very unnerving. I also wonder if she’s afraid to share her pregnancy with me. I’ll have to email her about that. I really think I’d like to be a part of her adventure. Part of me also wonders if she rushed into getting pregnant because of my tragedy. I’m 31; my son had Down Syndrome, a syndrome that most don’t equate with any pregnancy under 35. So I wonder if she got scared to wait (she’s 27). I hope not. I hope that I am being Narcissistic and that she didn’t give me and Logan a second thought. I hope that eventually I won’t think this way. But I’m scared for her. I find myself scared for all pregnant women now... and there’s that cynicism again.